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Links: Facial Differences - UK - Medical Condition

Children's Craniofacial Association

Children's Craniofacial Association is a national, 501(c)3 nonprofit organization, headquartered in Dallas, Texas, dedicated to improving the quality of life for people with facial differences and their families. Nationally and internationally, CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. CCA's mission is to empower and give hope to facially disfigured children and their families.

CLAPA - Cleft Lip and Palate Association - United Kingdom

CLAPA was set up in 1979 as a partnership between parents and health professionals. It provides support for new parents, and for people with the condition and their families, from infancy through to adulthood. It is the only UK-wide voluntary organisation specifically helping those with and affected by cleft lip and palate. It is unique.

Contact A Family

Every day over 75 children in the UK are born or diagnosed with a serious disability or rare syndrome and the vast majority of them are cared for at home. Contact a Family is the only UK charity providing support and advice to parents whatever the medical condition of their child. We provide information for adults with rare disorders as well as to families of disabled children.

Craniofacial Anomalies Network (CRANE)

The Craniofacial Anomalies Network (CRANE) collects data on patients seen by Cleft Lip and Palate Teams in England. CRANE is housed at the Perinatal Institute in Birmingham. The English National Health Service (NHS), through the Cleft Levy Board, funds CRANE. The CRANE Advisory Board manages CRANE. Representatives from the main specialities involved in Cleft care are members of the Board together with representatives from the Cleft Levy Board, a parent support group, the President of the Craniofacial Society of Great Britain and Ireland and representatives from countries that CRANE collects data for.

How Come You Look Different?: Resources on Craniofacial Anomalies

Comprehensive list of Links. Excellent start to find the information you require.

Let's Face It - United Kingdom

You are not alone..... with the fears and worries, regardless of why or how a face is disfigured We Understand... for we have been there and.. We survived !!

Red Black White

For children under 18 suffering from Port Wine Stain and other birthmarks.

The Birthmark Support Group

The Birthmark Support Group was set up in December 1998 at the suggestion of Drs Harper and Syed from Great Ormond Street Hospital for Children to provide a UK based support group for anyone with a birthmark. The word Birthmark is a common term used to describe the various birthmark types of which port wine stain, haemangioma and congenital melanocytic naevus are all examples.

The Disfigurement Centre

Excellent UK Based Site. Had extensive Links and much more.

The Personal Side of Craniofacial Differences

This page is dedicated to all of the people whose lives are affected by Craniofacial Disorders. If you are one of these people - this page is for you. Please look upon this page as "yours." I will need assistance from everyone to help locate as many personal pages on these disorders as we can find.

Xeroderma Pigmentosum Society

The XP Support Group is a UK charitable Trust founded in 1999 by parents of a child with XP. It aims to relieve the needs of persons with Xeroderma Pigmentosum and other related conditions and their families. The Group raises funds for research, gives grants for UV protective equipment and products, assists families to attend Camp Sundown or respite in a protective environment. We strongly encourage you to visit the XP Society web site, and invite you to return here for UK specific content and information.
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