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Links: Scleroderma - International - Medical Condition

Belgium - Association des Patients Sclrodermiques de Belgique

Cre le 1er septembre 1999, LAssociation des Patients Sclrodermiques de Belgique, constitu�e en A.S.B.L. a son sige social Froyennes, village proche de Tournai, dans le Hainaut.Elle a pour but de crer une chaine de solidarit� et despoir entre les patients.

Canada - Scleroderma Qubec inc.

In French/English La Sclrodermie (ou sclrose systmique) est une maladie caract�ris�e par une production excessive de collag�ne au niveau de la peau et des organes internes. La surproduction de collagne entra�ne un durcissement et une diminution de fonction des organes atteints. Dans sa forme la plus grave, le durcissement de la peau peut couvrir une partie importante du corps et entra�ner une perte fonctionnelle par diminution de la capacit de bouger les articulations. L`infiltration de collagne dans les poumons, l`intestin, le coeur ou les reins peut causer une diminution considrable de fonction. Ceci peut diminuer l`esprance de vie.

Canada - The Saskatchewan Scleroderma Self Help Group

The Saskatchewan Scleroderma Self Help Group welcomes anyone who wishes to learn more about Scleroderma - patients, family and friends. We try to provide support, information and friendship. We try to help patients and families cope with Scleroderma. We work to promote awareness of Scleroderma to the public and medical communities and encourage research through funding. We are a registered charitable organization - receipts are issued.

I Have Scleroderma

I've often felt alone and isolated with this disease nobody ever heard of. I used to look for faces like mine everywhere I went, as if I were searching for a long-lost brother or sister. Now I've been lucky enough to have made wonderful, warm friendships on the internet. And I've learned that my feelings of isolation are shared by many others. I made this page to help us find each other. I hope you will be as lucky as I have been."

Italy - Conoscere la Sleroderma

La Sclerodermia(pelle dura) � una malattia rara, cronica, autoimmune che affligge principalmente le donne dai 30 ai 50 anni. Globalmente colpisce circa 30 persone su 1.000.000 e le donne ne sono afflitte in ragione di 4 a 1 rispetto agli uomini. La Sclerodermia non � una malattia contagiosa.

Scleroderma and You

When I wrote this it was out of utter loneliness, I knew no-one with Scleroderma and found it very hard to get people to understand what was wrong with me. I am now in contact with a lot of woman all over the world and life is no longer lonely, I still have not met face to face with another Scleroderma survivor but have many photos of my overseas Scleroderma friends. I considered removing this article but have decided to leave it here for others to read.

Scleroderma Clinical Trials Consortium

The Scleroderma Clinical Trials Consortium (SCTC) is a charitable non-profit organization dedicated to finding better treatment for scleroderma. Member institutions of the SCTC conduct clinical treatment trials of new (and sometimes old) medications that appear promising for the treatment of scleroderma. The SCTC was started in 1994 with a handful of members and has now grown to an international membership of over 50 centers in the U.S., Canada, the U.K., and Europe. An annual meeting is held in conjunction with the annual American College of Rheumatology meeting in the Fall of the year. The next meeting will occur in November, 2001, in San Francisco. Specific dates and times will be provided. In addition, members of the SCTC have organized to set up trials of their own, with funding from organizations like

Scleroderma from A to Z

Thank you for visiting Scleroderma from A to Z. I hope we can help you find the comfort and/or information that you're seeking online. This is a major, worldwide resource for scleroderma, offering 550+ pages of medical and support information, in 14 languages. Volunteers have translated this site into Bahasa Malaysia, Deutsche (German), English, Espaol, Franais, Greek, Hebrew, Italiano, Kannada, Magyarul (Hungarian), Nederlands, Polski (Polish), Portugus, and Romana.

Scleroderma Research Foundation

Sharon Monsky started the Scleroderma Research Foundation in 1987 as the only organization in the nation dedicated exclusively to finding a cure for this little-known but incredibly widespread disease. As a patient, she was appalled at how little was understood about scleroderma and the lack of efforts being made to find a cure. As a businesswoman, she knew she could make a differnce.

Scleroderma Society of Canada

Our logo has five lines that represent the five objectives of the Scleroderma Society of Canada. The lines are blue signifying the effects of Raynaud's Phenomenon and extend beyond the main design to symbolize "thinking outside the box" or willingness to try new or alternative treatments until we have the cure. The circle represents a continuing or never ending effort to find that cure. The circle gets thicker to represent the thickening that occurs in our skin. The inside circle has the texture of granite to represent the way that our vital organs can become "rock" hard or less flexible until they don't function. SSC is at the center or heart of the logo because we are a caring and compassionate group.

Scleroderma Webmaster's Association

We make it easy to find scleroderma information worldwide. All our services are free, to members and visitors alike.

SD World

SD World is dedicated to providing support for people who suffer from scleroderma or other related autoimmune problems. Our interactive support services include SD World Email List, Message Board, and Late Nite Chatters. We also offer a rapidly expanding section of links for scleroderma medical, support, health or fun information

The Scleroderma Association of Queensland Inc

The Scleroderma Association of Queensland Inc was established in 1986 as a self help group providing support, information and counselling to people with scleroderma and their families. They recognized that sufferers often felt alone and isolated. Since this time the group has provided a meeting place for people with scleroderma and their carers.

The Scleroderma Foundation

The Scleroderma Foundation has a three-fold mission:
To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information.
To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns.
To stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.
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